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Welcome to Care4Dystonia, Inc.
This is our newly updated web site and we hope that you find it of value. We
have condensed much of our material into printable pdf files that you can
now print out online and read at your leisure. We have updated our links to
our newsletter and archived all our issues.
Each issue contains a wealth of information and may take some time to download as a few issues are lengthy
page-wise.
Our Stories of Hope contain new inspiring stories from others
diagnosed with dystonia. You are not alone.
You can also now Ask Beka directly a question via email. Due the the volume this site has received
over the last 11 years, we kindly ask that you provide Beka, Founder of
Care4Dystonia, Inc., 5 business days to respond to your questions.
We decided on a new fresh look recognizing the need to optimize
information into one central location with a global touch as well.
Let's get started. Beka, RN, MS, A-NP, Founder
We are a tax exempt 501c3 non profit and are listed by the US IRS as such. Have you seen the pictures and wonderful event hosted by the Bachmann-Strauss Dystonia Parkinsons Fd. titled " AN EVENING WITH ACTRESS ANN HATHAWAY " ? Please visit their site and watch the slideshow as funds were raised for BOTH disorders.Please visit www.MakeYourMarkCampaign.com for more information and to learn about the patient advocates leading Make Your Mark:
- Dawn Brinkley, 2010 Mrs. North Carolina and an active volunteer, was diagnosed with CD in 2004.
- Hallie Neill, a New York opera singer, actress and writer, makes her Mark on the world through creative expression. She has been living with CD since 2007.
- Alfred (A.J.) Deguio, a blepharospasm support group coordinator in New Mexico for the past 16 years who was diagnosed with blepharospasm 17 years ago.
Need SUPPORT? Listen to Dr. Mehmet Oz, MD discuss
dystonia
here. Are U at
Risk for Dystonia? ( Video )
New Dystonia Movie release from the UK : Copy and paste into your browser http://www.flukie.co.uk/Files/DystoniaFullMovie.wmv
NYC Marathon brings in more than $240,000 dollars for the bachmann-Strauss Foundation. Follow them on Facebook and read up on Jake's Cycle Ride. We applaud the BSDPF !
From Barcelona 2011 News : View this link :http://www.dystonia.org.uk/index.php/about-us/news/227-5th-international-dystonia-symposium. How far are we from a cure ? New advancing treatments ? Awareness is rising!
Dystonia Health Global Monitor
 Promote Our Page Too
View site map Site Updated 4.Jan.2012. Unique visitors to date in 2009-12 377,541.
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