Care4Dystonia - Resources

Resources & Support
This page can be used as your guide for support and links that we recommend. We highly recognize that emotional support is much needed in the area of dystonia ; thus we have listed many of the groups available to you. Send us a link to your group and we will be happy to add the link to this page.

US-Based Groups :

Care4Dystonia ED Forum NEW ! (moderated, uncensored)
Dystonia Foundation
ADS Community Center ( Moderated, private and public )
Dystonia Dreams (generalized dystonia Forum)
Dystonia Association of Kentucky (Coffee Chat every Wed)
Dystonia International BB Yahoo (moderated, private)
Dystonia BB Yahoo (moderated)
ST Bulletin (ST Q&A BB moderated)
NSTA (moderated, social network)
DMRF Support BB (censored, moderated)
- For Musicans
- For Dystonia
- For Dysphonia
OMD Network, contact irphil@earthlink.net
MSN Dystonia BB Friends with Dystonia
MySpace Dystonia-Neuromuscular BB
DBSSurgery Yahoo BB (moderated, great BB about DBS)
Tylers Hope (multiple BBs for kids and parents affected by DYTI gene dystonia form)
Tardive Dyskinesia (BB)
WeMove (generalized BBs wih chat rooms)
Ataxia Support (Gait BB)
Pain Support- Information
Migraines, a secondary effect of ST Forum
The Online Dystonia Living Magazine NEW

Attend a Movement Disorder RETREAT. Info can be found at http://www.spiritedmovement.org/retreats.html

Have you seen ? Dystonia full movie from the UK http://www.flukie.co.uk/Files/DystoniaFullMovie.wmv

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