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Publications
This area of the website provides you with additional KOOL information that you can use as you learn more about dystonia. We will add more material as needed. Two new brochures on dystonia and PD, which were originally written by our Founder in the 1990s and donated to the Bachmann-Strauss Fd. in NYC, have now been updated by them. Please contact them for copies of these two brochures or download them via these two links : http://www.dystonia-parkinson.org/files/Publications//dystonia_qa.pdf http://www.dystonia-parkinson.org/files/Publications//parkinson_qa.pdf We are trying to locate our 2000 ME AND DR. MOVE Children's Brochure from the BSDPF and the DMRF. This was donated to both organizations in 1998;but copyright ownership remains with C4D. We hope to resolve this issue as soon as possible.

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Publications
Your Bill of Rights as a Patient
Are U at Risk for Dystonia Tool
DeMystifying Dystonia
Dystonia Take Home Quiz
Distinguishing the Various forms of Tremor
Gene Basics
Oral Med Chart- Side Effects
Toxin Chart Side Effects
Struggling with Dystonia Article

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Our Surveys
Over the years we have collected a number of surveys that focus on the quality of care, trends within the dystonia community.You can find our most recent 2010 Survey by contacting us for a hard copy of the survey.
Dystonia Trends Surveys Dystonia Survey 2008
Dystonia Survey 2007
Dystonia 2003 Survey




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