27.Aug 2008

Our Publications

The following is a concise list of publications we are offering to patients, their families, caregivers and others online. We hope that you find this information clarifying, informative and will help us to Set the PACE ! They all are in pdf format, and are free of charge.

If you don’t have a copy of Adobe Acrobat Reader, click here to download a free copy.

 About Care4Dystonia

  1. Our New  Trifold Brochure 2007 Inside/Outside ( Zip File )
  2. Our New Poster: Setting the PACE C4D Poster 2007
  3. 2004 Poster 1896 of CD
  4. Are You at Risk for CD- Assessment Tool ?? ( Webpage )
  5. Our Views about Fundraising
  6. Clarifying Misconceptions about Us
  7. Changing the View of Dystonia : Past to Present
  8. C4D Logo 2007 ( Refer to Our Disclaimer webpage for Use )
  9. Media Activities C4D 1998-2006
  10. Moving Series Online @ http://care4dystonia.org/index.php/moving-series/

Awareness 

  1. Cosmos Postcard Awareness Program http://care4dystonia.org/index.php/cosmo-program/      
  2. Our Magnet Awareness Program
  3. Alice Cooper Public Service Announcements
  4. Our C4D Flash Movie on www.youtube.com
  5. Media Splash Nov 2nd 2007 on our Home page.
  6. Cosmo Ad on YouTube
  7. Dystonia Screensavers for Awareness
  8. Dystonia Wallpaper for Home Computers
  9. T-Shirts for Dystonia and ST, for inquiries , write to us at infoc4d@aol.com

                                                                             

Medications

  1.  Avoidable Medication List
  2. Side Effect Oral Med Chart
  3. Keeping  Track Of Your Meds

Botulinum Toxin Information

  1. Dosing Guidelines
  2. Side Effect Toxin Chart
  3. Keeping Track of Your Toxin Doses

DBS Information

  1.  Top 55 Questions to ask about DBS You should ASK before undergoing DBS : What You Should Know Today. Reviewed by Medtronic, Inc. ( 2007)

Selective Denervation

  1.  Denervation for ST- Cervical Dystonia : Where, When , How , Who ?

What do You know about Dystonia?

  1. Take our  DDQuiz
  2. DeMystifying Dystonia guide ( 30 pages )
  3. Recent Stats about Dystonia ( 2003 )
  4. Understanding Gene Basics
  5.  Struggling with Dystonia( 4 pages )
  6.  Types of Tremors ( 2005 )
  7. Your Views on Support Groups ( Survey 2007 )
  8. About ST aka Cervical Dystonia

Finding the Right Doctor for You

  1.  Tips to Finding a movement disorder specialist ( MDS ) 
  2. Your Bill of Rights as a Patient
  3. Medicare D Information

Pictorial Views of Dystonia

  1. DBS Photo Essay www.parasphotography.com/beka.html
  2. DBS Photo Essay 2 www.parasphotography.com/index2.html
  3. Let Dystonia Speak : Pictorial View of Dystonia ( under production )

Resource List :

  1. Dystonia Non-Profit Group List ( 1 concise page )

Copyright, 2007 -8.c4d.

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This site is dedicated to Deb Holton, Esq. aka Spazz.