Your Stories of Hope
Many of you have contributed your own personal experiences with dystonia. For many site visitors they have been inspirational. Feel free to contribute your story and we’ll be happy to post it here - Think of these as Stories of Hope! We’ve provided each story as a Word document or PDF. Some of these stories are in our Newsletter issues.
- Robert PDF format
(Lingual Dystonia) - David ( Word Doc )
(Lingual Dystonia) - Katie
(Generalized Dystonia with Dystonic Storms) - Donna ( website )
(Tardive Dyskinesia) - Jenelle and Leif ( our 1st Newsletter !)
(Dystonia with Dyskinesia / Pregnancy) - Howard
(Cervical Dystonia) - Dot Evans ( Word Doc )
(paroxysmal dystonia) - Candy’s Story ( website )
- Lorri’s Story
(torticollis and depression) - Dr. Robert Zozus’ Story
(ST with dysphonia) - Kim’s Story ( Word Doc )
Oromandibular Dystonia- Jaw Dystonia - Bren’s Story
(Generalized dystonia) - Dianne
(Dystonia and dogs!) - Bodie
(Lycopene use and dystonia) - Carol’s Story
(Biofeedback Use)
Dianne’s, Bodie’s and Carol’s Stories can be read at this link together : Dogs, Lycopene , Biofeedback ( Word Doc )
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- Karen (From New Zealand!)—–>December 2006 PDF format
- Terri’s Story—–>December 2006 PDF format
- Terri’s C. Story—-> December 2006 PDF format
- Mary Bessie’s Story —–> February 2007 PDF format ( DBS Success )
- Diane’s Story—–> February 2007 PDF format( ST, Driving and Border Collies )
- Phil’s Story—–> April 2007 Word Format, PDF ( OMD and Photography )
- Sheri’s Story—-> April 2007 Word Format, PDF format ( Generalized dystonia and Photography ). Sheri’s Photography can be found on our Artistic page as well as on her Yahoo site.
- Barbara’s Story ” Living with Dystonia “——> April 2007 Word Format, PDF format
- Tyler’s Story ( DBS ) go to www.tylershope.org
- A Case Study ( Phenergan Use ) —–> June 2007 PDF Format
- Mary’s Story ( Post-traumatic CD ) —–> June 2007 PDF Format
- Lorri’s Story : Alternative Medicine Use ——> Sept Newsletter 2007 Word Format ( longer version ) , PDF Format
- Nancy’s Story : The Use of Methadone for Pain control—–> Sept Newsletter 2007 Word Format ( longer version ) , PDF Format
- Pam’s Story : Opposing View of Methadone Use—–> Sept Newsletter 2007 Word Format ( longer version ) , PDF Format
- Pat’s Story : Massage Therapy and ST—–> Sept Newsletter 2007 Word Format ( longer version ) , PDF Format
- Ellen from Missouri —-> DRD, Dopamine-responsive Sept Newsletter 2007 Word Format ( longer version ) , PDF Format
- Martin Westall on Amy and Joy Westall
Read about the transformation in family life since his daughter had DBS surgery in Feb 2003 and his wife a year later.
Read Martin’s story >> www.parkinsonsappeal.com - Tom’s Story with ST and Weight Loss—-> click here http://www.deflame.com.
- Marcellin’s story about Blephropharospasm —–> December 2007 Newsletter.
- Sallys’ story about Dopamine-Responsive Dystonia —-> December 2007 Newsletter
- Nita’s Story : Wilson’s disease and Dystonia ( Word Doc format )
- Beka’s DBS Update parts 1, 2, 3 —-> DBS Webpage
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-
Toms’ Story —–> Feb Newsletter 2008 or PDF File zip
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Dianes’ ST Story ——> Feb 2008 Newsletter
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The Garman Special ——-> Feb 2008 Newsletter
- Don’s Story Kemadrin and Myobloc Use
- Linda’s Story with Oromandibular Dystonia —–> April 2008 Pdf Format Newsletter
- Sharon’s Experiences with Dystonia —–> April 2008 Pdf Format Newsletter
- De’s Story —–> June 2008 Newletter
- Bren’s Story Danskin Triathlete ——> June 2008 Newsletter
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Coming Soon to a webpage or newsletter near You !
- Sandy’s Story ( DAK )
- Andrew’s Story from the UK Coming Soon.
- Pauline Dawson from ADDER Coming soon ( www.dystonia.co.uk )
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