Dystonia Advocacy
Care4Dystonia works to improve access to quality care, eliminate discrimination against people because of their dystonia, and spreading word about issues such that the federal government is adequately funding research and programs specifically for dystonia. Take action today! Become an Advocate on the behalf of others affected by dystonia. There is Strength in Numbers!
If you have news of what was accomplished in April on Advocacy Day by DAK, please let us know.
Write to your State Representatives: http://www.house.gov/writerep/
Write to your State Senators:
http://www.senate.gov/general/contact_information/senators_cfm.cfm
http://congress.org
What’s occurring in Congress Today ? What Bill or Law is being discussed in the US Senate or House of representatives ? Find out via:
*http://usgovinfo.about.com/bllegday.htm
http://www.senate.gov/reference/common/faq/how_to_laws.htm)
Find every law in chronological order !
*http://www.cjog.net/fed_doc.html_
Learn more about Brain Awareness Week(http://www.dana.org/brainweek/) , a March international event organized by the Dana Alliance Organization.
Magnet Awareness Program: We’ve distributed over 62,000 magnets since Jan. 2006!
The Dystonia Action Committee , led by Rosalie Lewis, began its’ work on the legislative front in mid April 2007. Please visit www.dystonia-advocacy.org for more detailed information. DAC in ACTION ! You can now read their Postion Statement online.
Two Main Issues of Concern :
Will DBS Reimbursement be altered by Medicare due to the lack of adequate research outcomes data ?
Are new Biologics approaching current treatment options within FDA guidelines? Learn more in upcoming newsletters.
Going to Congress ?
13 major industry sectors are categorized by the Center for Responsive Politics, a non-partisan, non-profit research group that tracks money in politics. Health is one of these industries. These industry sectors lobby Congress on legislation, give campaign contributions to Members of Congress, and are affected by laws and regulations. OpenCongress will soon offer more detailed information about the many ways in which industries participate in the Congressional process. Our goal is to make it possible for the public to draw connections between lobbying activity, campaign contributions, and more.
Learn more at www.opencongress.org
Best Times to Visit Congress to sell Your Cause ?
Definitely not Monday. Your best bet is Wednesday when Congress passes the most bills ! You just might meet presidential candidate walking the hallways such as Clinton, Obama or Mccain. Who knows !!
Petition Drives :
- Trouble finding Health Insurance - Voice your concerns at www.voicefortheuninsured.org
- Add ” Klonopin to the Medicare Non-formulary Drug List Drive”
- Read the www.citizens.org Petition Drive to call FDA Black-box warnings for MyoBloc and Botox.
Copyright. C4D. 2007-8.