October Movement Disorder Month
Well, Fall is going to arrive tomorrow at 12:03 am. Hopefully I will be in a deep wondrous sleep. And October will be around the corner in no time. So will my sister’s 36th birthday. I still have to find her a present and send it to her. The leaves haven’t changed in Central Park yet. All still remains green. But there is a chill in the air. The medical practice where I work has already distributed close to 600 Dystonia Awareness Magnets for me ( www.care4dystonia.org/magnets.htm ) this month alone. They were also going to do PSA announcements over their weekly radio show as well for October. Over the last year I have developed a wonderful relationship with Solstice Neurosciences ( www.solsticeneuro.com ) who manufacture the only botulinum toxin B = MyoBloc ( www.myobloc.com ). They were the first to get FDA approval for treating cervical dystonia in early December 2000. Now they are offering to help distribute dystonia magnets to all their employees. In addition, their employees are helping me with my goal of sending out 1,000 emails to Oprah’s magazine , O-Magazine, in support of a printable story about dystonia. They are writing directly to the Editor , Amy Gross - omail@hearst.com. I had been writing to her for 2 years now. This is true collaboration, in every sense of the word. Now, there is talk about a voicemail from me to their employees about October and Dystonia Awareness. I’m overwhelmed ! There are over 40 million Americans suffering from a movement disorder in the U.S. And one , relatively poorly understood one, is CERVICAL DYSTONIA. Never did I expect this much support. I highly applaud Solstice Neurosciences ( www.solsticeneuro.com ). Everyone with dystonia should be doing the same. I wasn’t competing with any of the other groups- just doing my ” own thing” . And not waiting for others to catch up. Time is short for all of us. Now, what am I going to buy for my sister ? Any ideas ?
Leave a Reply